learn their child has special needs, they begin a journey filled with strong emotion,
difficult choices, and an ongoing need for information and support. Parents may feel
isolated and alone, not knowing where to begin. This website offers free support resources
for families with special needs - take a tour or
search on a specific topic.
This website is dedicated to Monica who was born with
multiple disabilities: cortical blindness, seizure
disorders and microcephaly due to an occipital encephalocele and Chiari
malformation. She has a genetic kidney disease called PKD, and hand and arm deformities from
Despite numerous developmental disabilities (due to the neural tube defect causing prenatal loss of brain matter) Monica
is a delightful, motivated and affectionate young lady who continues to learn new skills
and novel ways to enjoy life. She is an inspiration to all that know her.
A sampling of recent articles:
- Today's parents worry about a great many things, money being one of the most
common concerns. That's why putting sound financial and legal plans in place early is
the best way to create a solid financial
foundation. Financial planning
challenges for parents of special needs children are many and complex, and retirement
planning presents one of the toughest challenges. The core challenge is balancing the
financial needs of retirement with long-term needs of a child with a disability.
Social Security disability
benefits, which are often available to children with special needs, can provide
ongoing monetary support. Benefits can help ease financial worries and provide the
targeted care your child needs. Effective special needs planning requires a high
degree of legal expertise. A Special
Needs Trust offers a means of protecting your child's eligibility for benefits,
while addressing the ongoing care and needs of your special needs child.
Teaching self care skills is a
process that begins at birth and goes on into adulthood. Children with disabilities may
find these skills difficult to perform, but they will need to acquire these skills as
best they can to live as independently as possible. As caregivers to children and other
family members with special needs, one of the most difficult tasks you have may be
bathtime - 5 Bath Time Tips. Due to a
disability or after an injury, one may find it difficult to perform activities of daily
living. It may be necessary to use adaptive equipment to perform self care
and housekeeping activities, augmentative
devices to facillitate communucation, and mobility aids to get around.
- For too long, people with disabilities had been told that having families of their
own was not an option. The truth is that there have always been parents with disabilities, and as our society
evolves, more will have access to that opportunity. Thousands of children with special
needs and disabilities wait for caring
to offer them a permanent home.
Adoption can provide children with special needs the healing atmosphere and loving
bonds that can change their lives.
Making music enriches a special
needs child's life experience. Studies on the developing brain show dramatic
lifelong improvements in language, math, coordination, memory and motor skills, and
music therapy can be an effective tool.
Arts and crafts are important to the
development of all children, but particularly valuable to children with disabilities.
When creating art, the child is building a variety of expressive skills - both motor
and cognitive. Developing motor
skills is important for children. Teaching your child these motor skills through
crafts or games allows your child to learn while having fun. Learning these skills will
help prepare them for when they go off to school.
- As with any child, it's important to make your home as safe and secure as possible for your special needs child.
Your home can also become easier to move through and maneuver around with minor
home accessibility modifications.
Ramps for wheelchairs are
important for a variety of reasons. Whether at home, at an office, or anywhere in
between, they can substantially increase the quality of life for someone with a
Family fun and games bring not only enjoyment but health benefits. Taking time for the things that you
enjoy can help you feel better about yourself and you may be more likely to exercise, eat
well, get regular medical care and reach
out to friends and family - all of which can benefit you physically and mentally for a
more balanced life.
- When you choose toys for your child, look at
how well our children will benefit from these playthings not only in terms of having
plenty of fun but also in terms of their growth and development potential. When choosing
developmentally age-appropriate toys,
they should be slightly above your child's motor skill level, but ones that
can be played successfully. Her pediatrician, speech or occupational therapist, or
teacher can offer suggestions on
developmental toys that
will be most beneficial
- Pregnancy books tend to gloss over the special needs pregnancy, and prenatal classes
may ignore the possibility that you might give birth to a baby with special needs. Depending on the
mother's risk profile, special fetal
tests may be ordered to detect birth defects. After diagnosis, follow safety precautions and be prepared for the
birth of your special needs baby.
- The population is aging and creating a higher demand for home care. By the year 2020, 12 million Americans
will need long-term care. Home care serves
people of all ages who are disabled, chronically ill or in need of hospice care.
- Spending quality time with senior relatives can sometimes be a challenge. These
fun activities to do with the seniors
in your family will expose them to fun
technology while still offering an old school approach that holds traditional merit
for everyone involved.