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Welcome to family fun, family health, family life, and disability support for families with special needs.
This website is dedicated to my daughter Monica. She was born with a life-threatening neural tube defect, called an occipital encephalocele. This encephalocele contained a substantial portion of her brain. We were given a dire prognosis for our newborn. Two days after birth, on Christmas Eve, Monica underwent surgery. After 6 hours, we were given the news - Monica survived the brain surgery - our own Christmas miracle! Monica is now 22 years old. Monica struggles with multiple disabilities (cortical blindness, cerebral palsy, developmental delays, and a complex partial seizure disorder, (due to a neural tube defect called an occipital encephalocele) and hand and arm deformities (birth defects due to amniotic band syndrome.) Despite these disabilities, Monica is rarely sick. Monica is a delightful, loving young woman and is an inspiration to those that know her. |
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