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This website is dedicated to my daughter Monica, who was born with a life-threatening neural tube defect, called an occipital encephalocele. This encephalocele contained a substantial portion of her brain, and we were given a dire prognosis. On Christmas Eve, two days after birth, Monica underwent surgery. After 6 hours, Monica survived the brain surgery - our own Christmas miracle! Monica is now 23 years old. Despite multiple disabilities (cortical blindness, cerebral palsy, developmental delays, and a complex partial seizure disorder), Monica is rarely ill and has tremendous motivation, continuing to learn and enjoy life. Monica is a delight and inspiration. |
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Family disability resourcesDisabilities Online Directory - Disabilities Online directory of information on disabilities a - Disabilities-Online is a directory of information available on the World Wide Web for people with disabilities, their families and friends --- Disability Matters Ltd - Provide high quality and innovative services that enable clients to value disabled people as customers and colleagues --- Disability Resource Site - Disability resources, original & reprint articles on coping, listing of alphabetized, categorized, described and linked, disability web sites, and more. --- Invisible Disabilities Advocate-Chronic Illness - IDA creates a better understanding of chronic, debilitating illness with articles, a booklet, links, a message board, nutritional information and more! --- Promote Awareness- Improving the Public's Perception of People with Disabilites - Offering a wide variety of services and products designed to inform and educate businesses, families, educators, members of the medical profession, and the general public about the abilities of people with disabilities ---
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