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This website is dedicated to my daughter Monica. She was born with a life-threatening neural tube defect, called an occipital encephalocele. This encephalocele contained a substantial portion of her brain. We were given a dire prognosis for our newborn. Two days after birth, on Christmas Eve, Monica underwent surgery. After 6 hours, we were given the news - Monica survived the brain surgery - our own Christmas miracle! Monica is now 22 years old. She had multiple disabilities (cortical blindness, cerebral palsy, developmental delays, and a seizure disorder.) Despite these disabilities, she is a healthy young woman who is rarely ill. She has tremendous motivation and continues to learn and enjoy life. Monica is a delight and inspiration. |
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