Family skeletal resources
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 Click the red bus (top right corner of every page) to take a tour of our website and discover family fun and recreation, family health and wellness, family life and relationships, and disability support for families with special needs.This website is dedicated to my daughter Monica, who was born with a life-threatening neural tube defect, called an occipital encephalocele. This encephalocele contained a substantial portion of her brain, and we were given a dire prognosis. On Christmas Eve, two days after birth, Monica underwent surgery. After 6 hours, Monica survived the brain surgery - our own Christmas miracle! Monica is now 23 years old. Despite multiple disabilities (cortical blindness, cerebral palsy, developmental delays, and a complex partial seizure disorder), Monica is rarely ill and has tremendous motivation, continuing to learn and enjoy life. Monica is a delight and inspiration.  We hope you will enjoy your visit and then come back often, as we are always adding new family-related information, activities and resources. Click the red tour bus (top right corner of every page) to start the family tour.
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